November 30, 2004
Memento
Minor correction to yesterday's entry. It was a woman with a spinal cord injury. As Paul noted, treating someone with a spinal cord is not exactly newsworthy.
I've often wondered what I'd want done with my body after I'm gone. Right now, my living will states that I want to be cremated and have my ashes scattered in the Seine. But then I stumbled across LifeGem, a place that takes some of the carbon from your remains and turns it into a small diamond. A bit sentimental, but still, an interesting concept. There's something poetic about having a little piece of yourself turned into a jewel. Chances are that little gemstone would be around long after everyone who knew you had perished. However, I can't decide on a radiant cut or a princess cut.
This idea came from a list of science-related things to try before (or after) you die. Can someone hook me up with the chance to pet a tiger? I totally want to try that.
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November 29, 2004
Wish List
Researchers in South Korea have apparently used umbilical cord stem cells to treat a woman with a spinal cord to the point where she is able to walk. It remains to be seen whether these results can be reproduced in other cases. If cord cells can be substituted for embryonic cells, the current ethical debate on stem cell research might become moot.
What does your favorite differently abled blogger want for the holidays? So glad you asked.
iPod photo--because my current iPod is filled to bursting and because that new color screen is awfully purty.
TiVo Series2--because I want to be able to program it over the Web. And because I can put it on my wireless network, eliminating one long-ass telephone cord
Maxtor External Hard Drive--because I've tempted the fates long enough by not backing up my data.
Jonathan Strange and Mr. Norrell--because I'm tired of reading reviews telling me how good this book is
Star Trek Season One DVD Collection--because I can't get me enough Shatner.
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November 28, 2004
Empty Promises
The Minneapolis Star Tribune had an insightful editorial a couple days ago about the reauthorization of IDEA (Individuals with Disabilities Education Act). IDEA guarantees a free and appropriate public education for students with disabilities across the country. In 1975, when the law was originally passed, it stated that Congress would fund its share of special education costs (40%) by 1982. That date has been pushed backed--again--to 2011. In the meantime, states are expected to fully fund the difference. While the new version of IDEA improves certain regulatory aspects of special education, like finding students with disabilities and delivering services to them at an earlier age, it fails at the most critical level--funding. I expect we're going to see a lot of this sort of thing thing from this administration and this Congress over the coming years. They will pat themselves on the back for giving superficial support to this social program or that one, but the states will be expected to bear the financial burden of keeping those programs running. It will be the Reagan years all over again, with defense and debt maintenance taking a big bite out of our national budget, leaving everyone else to fight over the scraps.
I'm still trying to figure out whether to go to Mexico this winter. One thing I'm uncertain about is how to get from the airport to the resort. I don't want to get down there and find out my only transportation option is to be strapped on the back of a burro. Maybe I should check out New Orleans at Mardi Gras instead. Hmm, beads and bare breasts vs. sun and surf. Thoughts?
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November 27, 2004
Visitor
A friend of mine from law school is visiting shortly, so I don't have much time to write. I'll try to post again later.
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November 26, 2004
Rock Critic
I've been watching some of the episodes of Lost that I've downloaded over the last few weeks and I'm quite impressed with it so far. The writers manage not to telegraph a lot of the twists in the plot. Their presentation of one character's background story was almost ingenious in its execution because of how the writers play with the assumptions of the audience. However, I have doubts about how long a show like this can stay fresh, given the premise of everyone being stranded on a remote island. It's not like they can bring in a different guest star each week, at least not without turning it into Gilligan's Island.
I downloaded U2's new album off of iTunes earlier tonight. My initial reaction is that it's pretty good, but I wish the band would return to some of the experimentalism they showed in Achtung Baby and especially Zooropa. Zooropa remains my favorite album of theirs. It had a noirish, urban tone that wasn't necessarily cynical, but it kind of felt like something you would put on while you were reading William Gibson. Listening to it, I could almost imagine myself walking the nighttime streets of Berlin or Paris.
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November 25, 2004
Danke
My sister picked me up some mashed potatoes and stuffing from a local deli and now they've been sitting in the freezer for the past couple days. I'll pull them out in a couple hours and have myself a little Thanksgiving snack. And maybe I'll sprinkle a little nutmeg in my tube feeding for good measure. I want to wish all of you--friends, family, nurses, regular readers, casual visitors, and even the obsessive on-line stalkers--a Happy Thanksgiving. As always, I'm grateful for your continued patronage of my little corner of the blogosphere. I hope that wherever you are, the food is good and the company is pleasant.
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November 24, 2004
Shaking In My Boots
Do you think we Americans would ever get off our fat asses to protest a stolen election? I look at the faces in the crowds of Kiev and I wonder if we are still capable of exhibiting mass displays of righteous indignation. The long decades of peace and frivolity we've had in this country may have robbed us of our capacity to feel passionate about much of anything anymore. Oh, I know we were supposed to be really tuned into the last election, that this was the first time lots of people voted. But I'm feeling cynical right now. I think that more people are thinking about how much they can afford to charge on their credit card this Xmas than they're thinking about the big issues.
You know, big issues--like the potential collapse of our debt-ridden economy. And then last night I was watching Charlie Rose and he was interviewing some former Microsoft exec who now dabbles in policymaking. He was forcefully making the point that the technological barriers to creating bioweapons are very low and could be surmounted by a small, determined group of zealots. Nothing like some apocalyptic foreshadowing before bed.
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November 23, 2004
Rubberband Girl
Listening to Kate Bush's last album--The Red Shoes. Not her best effort, but it has its moments. "Moments of Pleasure" is one of the loveliest songs she has written. What the hell ever happened to Kate Bush? I think I remember reading somewhere that she simply decided to stop making music. What a shame. If I ever wrote a book that was turned into a movie, I'd want Kate Bush featured on the soundtrack. Maybe I can coax her out of retirement once I make it big.
But first the book needs to get written, which is why I'm going to cut this entry short and get to work...
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November 22, 2004
Open Season
The shooting rampage that occurred in western Wisconsin (maybe 75-100 miles east of Minneapolis) has received a lot of coverage in the local media over the last day. I'm as mystified as everyone else about the shooter's motive. Deer hunting is a big deal in these parts. A lot of families will take their kids out of school for extended periods during hunting season. But I have no idea if these murders really had anything to do with hunting. Neighbors of the suspect describe him as a quiet man who kept to himself. Is it ever the loud, gregarious types who snap and go on shooting sprees? Just once, I want to hear about a mass murderer who is the office clown or who always threw the best block parties.
Managed to smash my foot into an elevator door today. I can't seem to go more than a few months without brutalizing one of my feet. If it wasn't for the ascetics and my aversion to surgery, I'd have the damn things chopped off. Besides being the raison d'etre for my shoes and socks, they aren't really doing anyone much good.
Why do I still have my VCR? I think it's been a year since I last used it. If I want to capture something off television, I'll either use my TiVo or bittorrent it. All the VHS movies I have could easily be replaced with DVDs. I suppose I want to be prepared for some kind of analog emergency, but one of these days I should consign it to the dustbin of irrelevant technology.
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November 21, 2004
Snow Job
This weekend, people seem determined to join the ranks of the unemployed. Yesterday, it was the IT guy at Target. Today, I read in the local paper that two local attorneys, married and both employed in local government, were arrested on suspicion of cocaine possession. I actually remember one of the attorneys from my time as a law clerk. I remember thinking that he seemed like a fair-minded, decent guy. And no, I'm not implying that he's not decent and fair-minded simply because he may have done some coke. But if I was him, I'd be more than a little nervous at the prospect of joining some of the people I've put in prison in their current place of residence. Actually, they probably won't do jail time, but their attorney's licenses might be in jeopardy.
I'm pissed at myself for falling behind on the book. Since I caught this cold (which is nearly gone), I haven't had much energy for writing. With the coming 3-day workweek, I'm hoping I can find some kind of rhythm again.
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November 20, 2004
Blue Light Special
Holy crap! Target is selling anal massages for only $35.96! That's a steal, trust me. My last anal massage set me back at least fifty bucks. But do I have to actually go to the store to get my massage, or will they deliver it to my home? And who actually does the massage? A matronly-looking Swedish woman or some sweaty ex-con named Buck?
I predict that someone in the Target IT department is going to get a pink slip in five...four...three...
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November 19, 2004
Really Big Show
Man, I feel like this week went and kicked me squarely in the ass. Before I sign off, I'll leave you with a link to this video mash-up. Enjoy.
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November 18, 2004
Quoth The Raven
I recently wrote about a multi-year grant that my employer was being awarded. Today, I found out that I have to go to Baltimore next month to meet with representatives from CMS and discuss the details of implementing the grant. Never been to Baltimore before. When I was finishing law school, I applied for a fellowship at Johns Hopkins but wasn't accepted. I know the best crab cakes are supposed to be had in Baltimore. And it's the city where Edgar Allen Poe did most of his writing. Baltimore in December doesn't sound exactly charming, but it should be interesting nonetheless. My only concern is that I'd like to bring two nurses with me for the trip. After Miami, I've realized how much easier it is to travel with two people, especially when there's a flight involved. I'll have to see what I can negotiate with my employer.
This is too cool. Kevin Kling, a writer and storyteller from Minnesota, is profiled on the BBC. You may have heard Kevin on NPR from time to time, where he is a frequent contributor. Kevin is an artist with a disability, but his disability is the least interesting thing about him. I shared a table with him at a recent fundraiser and I listened to some of his stories about visiting Turkey. Kevin is a sophisticated observer of human behavior and his stories are so much fun to listen to because he knows how to play off the audience's emotions. If you're in the UK and have an interest in storytelling, you should really try to go see him.
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November 17, 2004
Reading Rainbow
Art can be found in the most unexpected places. Check out these photos that were taken in an independent bookstore in San Francisco. A local artist arranged all of the books according to color. The effect is more than a little surreal.
My sister just called to urge me to get a cat. I told her I don't want any animal that shits in the same living space that I occupy. Don't get me wrong; cats are okay. But I've always preferred the company of dogs. Dogs seem to "get" people more than cats. Having a cat is like having a passive-aggressive roommate.
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November 16, 2004
Assigning Blame
There have been some grumblings in Democratic circles that the issue of gay marriage may have cost us the election. If ever there was a red herring to rationalize our loss, this is it. In states that had ballot initiatives banning gay marriage, Bush improved his level of support by the same margin as in states without gay marriage on the ballot. Bush simply did a better job of selling himself than our guy did. But we Democrats always love a good scapegoat on which to pin our electoral frustrations. The issue of gay marriage may be this year's Nader, which is completely unfair to gay activists. We have already won this culture war. I am convinced that the antipathy towards gays is more of a generational issue than a religious issue. Once the Boomers start shuffling off this mortal coil, we'll probably look back and wonder what all the fuss was about. In the meantime, people in red and blue states will continue to live and work alongside gay neighbors and colleagues. Let the wingnuts like Dobson have their final hurrah. Call me naive, but I believe that most Americans are decent, fair-minded people who won't go along with the repressive policies of a hateful few.
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November 15, 2004
Archivist
Can one man go through an entire box of tissues in one day? My nose and I are determined to find out. I hate this stage of getting a cold; everything feels a bit foggy and I have this dull, low-intensity throbbing in my temples. But hey, I'm getting the chance to catch up on some reading and I've started listening to the complete set of Star Wars radio dramas that NPR did back in the early 80s. There are some fun scenes here that flesh out the themes of the movies. And Mark Hamill's Skywalker sounds even whinier, if such a thing is possible.
I've been looking for a good program to help me keep track of my books and DVDs. I have a feeling I have unread books that have been collecting dust since the Clinton Administration. But all the good software for this sort of thing seems to be written for OS X. Or am I just ignorant?
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November 14, 2004
A Case Of The Blahs
I guess this was inevitable. Half of my nursing staff has had the sniffles over the past week and apparently the virus decided to share the love with me. So far, it's not too bad. A sore throat and a low-grade fever. I'm a little bummed that I wasn't able to go the rest of the year without getting sick again, but better now than when I'm supposed to go on a trip or something. Let's hope it runs its course quickly and, as always, good karma is welcome.
I belatedly realized that there was a problem posting comments on the blog since I upgraded. That should be fixed now, so start talking to me again.
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November 13, 2004
Checkmate
My parents are in town this weekend and last night my dad asked me to play chess with you. Mind you, I haven't played a complete game in at least a couple years. I made a few colossally stupid moves, but I somehow managed to pull off a checkmate using a knight-bishop-rook combo. It was an obvious and clunky strategy and my dad knew he should have seen it coming. Now he's demanding a rematch and I have a feeling I'll get my butt kicked this time. Maybe I should fire up my Chessmaster program and play a few speed games to get in my groove.
Earlier today, I was browsing through some of the galleries on Worth1000, a site that holds several Photoshopping contests each week. There are some people doing really fun and original art here, with lots of sly undertones of humor. Check out this week's pirate gallery to see what I mean.
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November 12, 2004
Dead & Buried
With the death of Yasser Arafat, perhaps we will finally see some real movement towards a two-state solution of the Israeli-Palestinian conflict. Back in 2000, it seemed like they were on the verge of an agreement, but Arafat was more concerned for his personal safety than for the future of his people. Bush's conservative Christian base with probably push hard against any negotiated agreement, but I think Bush and his inner circle understand that some kind of settlement is inevitable and that they need to do something to boost their credibility in the Arab world.
I finally got around to watching the first episode of Lost on my computer last night. This was the first time I ever watched something recorded in high-definition and I did utter "Wow" a couple times during the program. The image quality of HD is almost startling. Once I can get a high-def television with a built-in TiVo box for under $600, I'm sold. Watching television on a computer is acceptable, but there isn't enough space under my desk for me to cross my legs, which is my optimum television-watching position.
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November 11, 2004
Does It Come With Lumps?
Do we really need a soda that tastes like mashed potatoes? Nobody likes mashed potato more than me, but I prefer them without the carbonation. I know these holiday-themed sodas are mostly a marketing ploy, but they conjure up some unpleasant memories. When I was first put on the ventilator, I was forbidden from eating anything orally because my doctors were afraid I would aspirate and develop pneumonia. My consolation prize was these little spray bottles that contained flavored liquid. I was supposed to spray my mouth whenever I got the urge to taste something. One was supposed to taste like peanut butter and jelly. I think another one was pizza-flavored. As you might imagine, they weren't that satisfying. These sodas seem like something you would give to someone who's on a restricted diet because you want to them to feel included in the holiday festivities. Except that all you really end up doing is making that person even more depressed because they're stuck sucking some artificially-flavored water through a straw while you're chowing down on stuffing, glazed yams, and pumpkin pie.
Man, now I'm hungry for mashed potatoes.
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November 10, 2004
Think Global
I've written before about the UN's efforts to pass a Convention on the Rights of Persons with Disabilities. In a recent Washington Post editorial, the Bush Administration is criticized for not supporting the Convention. Apparently, the Administration feels that disability rights is not a human rights issue. Instead, they view it as a matter of domestic policy for each nation to sort out independently. I should know by now that the Bushites regard the UN with barely concealed disdain, but it's especially discouraging to see them withhold support from an international effort to improve the quality of life for millions of people around the globe. It's okay for us to invade a country and topple its government, all in the name of spreading freedom and democracy, but we won't sign a treaty on disability rights because it's none of our business when other countries blatantly oppress an entire class of people. It's this kind of hypocrisy that's going to drive me nuts over the next four years.
I'm tempted to start a letter-writing campaign urging the Administration to change its stance on the Convention, but I don't know where to apply the pressure. My senator? And are American disability organizations doing anything about this, or are they fixated on problems here at home? The United States could be a true leader in this area, but given the toxic state of our international relations and our leaders' lack of vision, we're sitting on the sidelines.
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November 09, 2004
Professional Pride
I am now officially two for two when it comes to writing grant proposals. This week, we should get official word that we will be awarded a demonstration grant to provide medical and job supports to a limited number of employed individuals with mental illness. It's something I worked on over the summer and it's gratifying to learn that the ideas my colleagues and I developed will now be implemented in the real world. It also means that the next few months for me are going to be incredibly busy as we bring on new staff and start crafting policies for the demonstration. But I don't mind. One of the best aspects of my job is the diversity of the things I get to do. I'm excited about the prospect of being involved in a new project from day one. More importantly, I think this demonstration has the potential to make a difference in the lives of people who are coping with mental illness.
I'm going to continue my Firefox evangelism. Version 1.0 was released today. Download it. Use it. Free yourself from the plague of pop-ups shilling car insurance and on-line poker. Sleep soundly at night with the knowledge that your computer is safe from pimply-faced script kiddies. Feel slightly smug about causing a .001% decrease in Microsoft's share of the browser market.
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November 08, 2004
Pearly Whites
I'm usually up on gaming hype, but the first time I heard about I Love Bees was in this NYT article. It reminds me of a game I played a few years ago called Majestic. Same principle--the game's creators would plant clues and instructions on various websites that would advance the game's plot. I Love Bees goes the extra mile by encouraging players to leave their computers and interact with the real world. For example, players would have to seek out pay phones that would ring at a precise time with instructions or another clue. You're going to see a lot more of these types of games being developed. They're a great viral marketing tool (I Love Bees is a promotion for the Xbox game Halo 2; a similar game was done a few years ago for the movie AI). And they're cheap to produce. All you need to do is assemble a few writers, some web designers, maybe a few voice actors. If this whole policy wonk thing doesn't work out, maybe I can write scripts for another game--a game featuring a man in a wheelchair who issues cryptic clues about an international conspiracy from the comfort of his base of operations in an anonymous condominium building in an anonymous Midwestern city
I went to a new dentist today. Apparently, I have very hearty, decay-resistant teeth. Considering how little use they get (most of my nutrition comes through a gastrostomy tube, for those of you new to this blog), my teeth shouldn't be falling out of my head anytime soon. My teeth are kind of like the after-market rims some kids put on their cars; all form and not much function.
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November 07, 2004
Faster Than A Speeding Bullet
I saw The Incredibles yesterday and it has a lot to recommend. The script nicely captures suburban angst as experienced by a family of superheroes-in-hiding. Comic fans will appreciate some of the winks that the movie gives to tropes of the genre--the hidden base on a volcanic island, the capes superheroes wear, the evolution of supervillains, etc. A lot of the humor will go right over the heads of most kids and they won't even notice; a testament to the skill of the writers. The only bummer was that I missed the teaser trailer for the next Star Wars movie. I know I can easily find it online, but it's not quite the same as seeing it on the big screen.
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November 06, 2004
Creative Differences.
I'm totally bummed that the WB network passed on Warren Ellis's Global Frequency. I've read a few issues of the comic and it's exciting, mind-bending stuff. Here's hoping it will get picked up by another network.
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November 05, 2004
Recharging
Now that the election is over, I'd like to start catching up on some things that I've been neglecting over the past few weeks. Progress on the book has been sporadic and I need to get back in a writing groove. There is a pile of unread books sitting on my bookshelf, plus one or two I'd like to pick up. I have a bunch of downloaded TV shows that I haven't gotten around to watching. I'm still trying to find a gaming partner so I can check out Half-Life 2. And tonight, I think I'm going to see The Grudge with my sister.
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November 04, 2004
Get A Grip
Amidst all the gnashing of teeth and scratching of heads, there were some bright spots in Tuesday's election results. In Minnesota, the DFL picked up thirteen seats in the state House of Representatives, leaving the Republicans with a slim two-seat majority. In Colorado, Democrat Ken Salazar was elected Senator in a state that went for Bush. In Dallas (!), a Hispanic woman who is openly gay was elected sheriff. I'm not saying this makes up for the bitter Kerry loss, but the suicidal ramblings of some Kos readers are annoying the fuck out of me. We need to do a serious gut-check. Are we going to skulk around the next two years, whining on and on about how stupid the other 51% of America is? I can guarantee you that the other side is already mobilizing for 2006. We need to do the same.
And a word of advice to the voters in Iowa and New Hampshire who will be voting in the 2008 primaries. You might consider picking a candidate who is seen as more representative of Middle America. Not that I wouldn't love to see Hillary run, but someone like Russ Feingold may be worth a closer look.
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November 03, 2004
Mourning In America
My brother broke down the people who voted for Bush into two categories: Christian fundamentalists and people who are scared to death of terrorism. Probably a facile analysis, but I think it captures the essence of what happened yesterday. I knew it was over when I was standing in the middle of a ballroom in the Minneapolis Hilton and on the giant screen in front of me, CNN called Florida for Bush. I hung around until 1:30 in the morning, hoping against hope that Kerry would close the gap in Ohio, but that didn't happen. I must now reconcile myself with the fact that I, along with most of my friends, now occupy the ideological minority of this country. From my little blue island of Minnesota, I am confronted with a vast red swath of true believers who fervently believe that Bush will save them from the lurking hordes of queers, abortionists, and Muslims. What worries me more is that the vast, grassroots, progressive network that has been built over the last 18 months will collapse in the wake of Kerry's loss. There are a lot of disgruntled college kids out there who may never vote again, much less volunteer for an organization like ACT.
If we Democrats hope to have any success in the next decade, we need to sustain and grow the infrastructure that we've assembled in such a short time. More importantly, we need to package a set of ideals and values that will have some currency with the traditionalists in our midst. To be honest, I'm not sure how we do that without compromising our core Democratic beliefs. That's a task better left to people much smarter than me. But I do know that I can't walk away from this struggle now. I'm going to talk to some DFL people I know and figure out what I can do to sell the liberal message in 2005, 2006, and beyond.
But right now, I need to sleep.
Posted by wintermute2_0 at 07:21 PM | TrackBack
November 02, 2004
Mosh
Don't know if I'll have much time to blog today. I'm slightly encouraged by early reports of heavy turnout in the battleground states.
GOTV!
GOTV!
GOTV!
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November 01, 2004
Rock The Vote
I'm not going to make any predictions about the final electoral or popular vote. There are enough people, both in the blogosphere and in the mainstream media, who are more than happy to read the tea leaves for you. I will describe my mood right now as cautiously optimistic. As I have been saying all along, this will come down to the ground game. We'll see if the efforts of groups like ACT and MoveOn really do live up to the hype or if the Republicans remain the masters of grassroots organizing. No matter what happens, I think it's important to remember how we got here. Three years ago, in the wake of 9/11, I doubt anyone could have foreseen the steep plummet in Bush's popularity and the rising discontent with his policies. This country remains deeply divided and it's a state of affairs that is likely to continue well after the election. Kerry is not the perfect candidate; I'm the first person willing to admit that. But in the final analysis, I am convinced that Kerry has the intelligence, the temperament, and the talent to steer our nation towards a better, more equitable future.
Some of my Republican friends have referred to my close attention to this election as "handwringing." If a deep concern for the current state of our country is handwringing, then so be it. I'm still enough of a dreamer to believe that we are capable of so much more as a country and as a people. Tomorrow, we'll see how many other people share that dream with me.
Speaking of, I'm going to be away from my computer, as well as most other media, for nearly the entire day tomorrow. Maybe I'll hand out my cell number to a few people who can call me with important developments. Important developments=good news. I can hear the bad news soon enough.
To all of my readers with disabilities, I hope you make yourselves heard tomorrow, regardless of whom you support.
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